The Hughes

The Hughes

Friday, October 30, 2015

Honoring My Hero

A few weeks ago I celebrated my one year liver-versary, which you can read about HERE.  Not only was this the first anniversary of my transplant, but it also marked one year since my donor's death.  Although it was an exciting day for me as we celebrated an entire year of renewed LIFE, I also knew that a family somewhere out there was grieving one year of LOSS.  As I was celebrating, they were mourning.  If I'm being completely honest, I was mourning right along with them.  I continue to struggle with feelings of sadness and guilt regarding my transplant.  Survivor's guilt is what they like to call it and apparently it's not uncommon.  Whatever it's called, it's been haunting me for more than a year now.  I even wrestled with these feelings in the months leading up to my surgery, feeling like I was just sitting around hoping someone would die.....waiting for them to pass from this life to the next so that I could have what I needed.  It's a complicated, unexplainable mix of emotions and I probably sound like a nut case even talking about it.  But, this is my reality and one that I am still working through.  

This lack of closure and inability to move on is only compounded by the fact that I still know nothing about my donor.  NOTHING.  Not their age, their gender, their location, or their cause of death.  All I know is that I am eternally grateful for the selfless decision of this perfect stranger to give me the gift of life.  I have written to the family twice now, but have not heard back from them and probably never will.  I'm sure at some point I will move past these feelings but right now, even one year later, they are still very raw.  

In saying all of this, you can imagine my need to honor and celebrate the life of my anonymous hero.  I decided that I wanted to release 12 green balloons in to the sky, each one representative of the 12 months of life that he or she gave me as their final act of kindness on this earth.  The green, of course, is the official color of organ donation.  My friend Megan met me out in the middle of a beautiful field right at sunset and captured these very special moments as I looked to the Heavens and slowly watched each balloon make its way upward.  I hope in some small way it brought honor to this person and their family.  And perhaps one day I will be able to share these pictures with the family.  That's the prayer of my heart.
































Matthew wasn't there but Kyndall was and she wanted to release a balloon as well.  I brought along an extra one so that she could participate too.  Although she is much too young to truly understand what happened to my donor, she does know that someone gave me a very special gift and she is just as thankful as we all are.



















And just like that, they were gone!  I hope to continue this tradition every September, adding 12 more balloons with each passing year.  How amazing would it be to see 120 balloons floating away at my 10 year liver-versary?  

If you've never considered becoming an organ donor, I hope that you will give it some thought.  Did you know that you're much more likely to NEED a donor than to BE a donor??  What if it was you or a loved one who desperately needed a life-saving organ.  I can tell you that I never in my wildest dreams thought it would happen to me.  There is such a need for donors, yet organ donation lacks the attention that many other causes receive.  For someone with a failing organ, donation is their CURE!  Don't you want to be that cure for someone?  Every single day more than 20 people die waiting on their "cure" which never comes.  This just should not be.  It's absolutely heartbreaking and very frustrating to know that one simple decision could prevent this.  Please, I beg you to consider registering as a donor.  

Photo Credits:  Megan Shaw of Megan Shaw Photography 


Tuesday, October 20, 2015

Fall Happenings

If you know me very well, you know that Fall is my absolute FAVORITE time of year!  I love everything about it--the cooler temps, new wardrobes, bon fires, hayrides, hot chocolate, Halloween, the fair, the changing leaves, pumpkin carving and the anticipation of the upcoming Thanksgiving season.  It's simply the BEST.  Last year I didn't get to enjoy Fall quite the way I wanted to.  I was stuck inside a hospital room on the transplant floor at Vanderbilt, fighting a terrible rejection episode less than a month after my transplant.  I remember sitting in my hospital bed weeping, longing to feel the cool air on my skin and see the beautiful leaves changing.  I saw pictures of my friends taking their kids to the pumpkin patch and it made me angry that I wasn't able to do the same.  I felt cheated and at that moment I vowed to never take these seemingly "little" moments for granted.  I would've given anything to carve a pumpkin with Kyndall or help her choose the perfect Halloween costume.  Thankfully, I was released at the end of October and made it back to Jackson just in time to enjoy a few of these things!  

This year I was determined to soak up every moment of this most perfect season.  We have decorated our house for fall, made a trip to the pumpkin patch, carved pumpkins, enjoyed several bon fires, sipped on hot chocolate and  snacked on warm cookies, and spent as much time in the cool fall air as possible.  We are looking forward to Halloween as well as a trip to the North Florida Fair in the next two weeks!  We also have our yearly family pictures coming up, which is my all time favorite form of family torture. Always a good time.

Yesterday after church we made our annual trip to Green Acres Farm to pick out the perfect pumpkin....or, pumpkins since Kyndall absolutely NEEDED one of every shape, size and color.

Notice anything strange about this picture?  I'm not really sure what was going on but....WEIRD!




Last year.....


 This year


Last year


This year


2014

'

2015





Her perfect pumpkin!



Last year....



Now.....





Green Acres operates off the honor system and each family is responsible for keeping up with how much they owe and placing it in this mailbox as they leave.  I think this speaks volumes of the community that we live in and was a great teachable moment for Kyndall on the importance of honesty and integrity.




Love this comparison too!

Now.....


Then....






Somehow we came away with way more pumpkins that we intended



Kydall LOVES to decorate the house for Fall, and I've been forced to let go of my OCD/perfectionist tendencies and just let her enjoy it.  It kind of looks like Fall threw up in our house.


(Yes, those are leftover minion themed birthday balloons you see in the corner.  I live with a tiny hoarder who won't let me throw anything away.)


This was the only part of the house I was allowed to decorate, and that's only because she couldn't reach it


Huckabee the photobomber


Photobombing dog again


 One of my favorite decorations is this turkey that she (I) made when she was a little over a year old.  We made it with our Moms and More play group when we lived in Charleston and I still put it out every year.


This.  This......I just have to turn my head.  If I move it, she has a come apart.  She says it looks "just perfect".  So, with every fiber of my being I have resisted cleaning it up.




After dinner Daddy and Kyndall began carving the pumpkins.  She chose a Frozen themed carving kit and her first choice was Sven the raindeer.




This picture pretty much sums up how it all went down.  Kyndall stuffed her face with junk food while Matthew did all the work.



See Sven's face?


This past Saturday Kyndall cheered at her very last football game of this season.  Technically there is one more this coming Saturday but she is in a wedding so we will be out of town.  We took lots of pictures to commemorate her last game cheering for the Titans!

All decked out in her pink to support breast cancer awareness





I love these girls!  Such sweethearts!







With their sweet coach, Mrs. Crystal




Look at my girl gettin' down!





Meet Bennett the adorable, son of Susannah, future husband of Kyndall.  


Future in-laws


We carried on our tradition of getting Dippin' Dots at the pharmacy after the game.  Even though there won't be anymore football games, we might still have to do this on Saturday afternoons!



Things are picking up and our schedules are overflowing with fun fall activities!  When I look at my calendar for the months of October and November I have a slight panic attack wondering how we're going to squeeze it all in and keep it all straight.  I'm not sure how we got this busy but I am sure that I love it!  Sure beats last year!  

Here's a small sampling of all the fun things we have coming up before Thanksgiving, beginning this weekend when Kyndall is the flower girl in a wedding back home in Tallahassee....

3 trips to Tallahassee, 1 wedding, 2 visits to Vanderbilt, Halloween festivities, 1 trip to the North Florida Fair (my fav fall activity!!), 1 speaking engagement for Donate Life, 1 baby shower to host, 1 birthday party to attend, 1 kid-free dinner banquet, family Christmas card pictures, Kyndall's first piano recital, a dedication ceremony for my late Granddaddy in Two Egg, countless church events and commitments, a weekend visit from a hometown friend, and FINALLY, we wrap up the month of November with our very long awaited, much deserved trip to DISNEY!  On top of all these activities, we still have our regular schedule consisting of pre-school two days a week, three dance classes a week plus piano lessons.  It sounds exhausting and truly it is, but I honestly wouldn't have it any other way.  Life is way too short not to pack it full of fun!

Kyndall and I will head to Tallahassee on Thursday where she will be the flower girl for a lifelong friend of ours whom I used to babysit.  Suddenly I feel very old.  I can't wait to see how much fun she has being a part of such a special day.  She is SO excited!  I'll be back this time next week with plenty of pictures to share!  

Happy Fall, y'all!